A RARE Networking Opportunity
Rare Disease Day | 26 February | Leiden Bio Science Park
Rare Disease Day is about awareness.
But awareness only matters when the right people are in the room.
On 26 February, A RARE Networking Opportunity brings together patient representatives, researchers, policymakers, and leaders from biotech and pharma for an evening focused on dialogue, responsibility, and shared understanding across the rare disease ecosystem.
Our partners
Why join?
This is an intentionally curated networking event.
No pitches. No panels built for optics. No corporate showcases.
Instead, the evening is designed to create space for meaningful conversation between those living with rare diseases and those shaping research, policy, and development decisions.
Rare diseases sit at the intersection of science, policy, and lived experience. Progress depends on collaboration, yet these perspectives rarely meet on equal footing.
This evening creates that intersection.
You will:
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Engage directly with patient representatives and advocacy leaders
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Exchange perspectives with peers across industry, research, and policy
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Take part in a Rare Disease Day initiative that values substance over visibility
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Be part of a community-first event designed around listening and interaction
Who is this event for?
The format is deliberately small-scale, capped at approximately 200 participants, to preserve quality of interaction. Accessibility is integrated from the start, reflecting the realities of the rare disease community.
Industry supports the event to enable independence, accessibility, and an open format without turning the evening into a promotional platform.
Patient representatives and advocacy professionals
Event details
Date: 26 February
Location: Emmy Noetherweg 2, Leiden, Netherlands
If you believe Rare Disease Day should be more than symbolic, join the conversation.